How Do Autism’s Symptoms Relate
To Abilities Of Non-Autistic People?
Good afternoon. My name is James Williams.
I have a condition known as autism.
Do I look autistic?
I don’t look autistic. I look like an average
person. That’s because you cannot take a look at someone and say they are
autistic. You can, however, look at someone in a wheelchair and say they are
physically disabled.
This is what separates autism from other
disabilities.
In my presentation, I’m going to be using the word
“neurotypical.” For those of you who don’t know what that means, it is a term in
the autism community that means “not autistic.” That means that most of you
would be neurotypical.
Also, there are many different types of autistic
people. Some are lower functioning than others. A lower functioning person is a
lot different than someone that is higher functioning. I am considered a
high-functioning autistic person. For this reason, most of what I say is
relevant to higher-functioning people with autism, though lower-functioning
people do have many of these symptoms as well.
I’d like to start now by asking you this.
When you get up in the
morning, what do you do?
You get dressed, brush
your teeth, eat breakfast, and get ready for school. You do it so many times
you don’t even think about it.
That routine, however,
only works if you can brush your teeth, eat breakfast, and get ready for
school. Let’s say one morning you woke up, and you tried to get dressed, but
you couldn’t.
What if you woke up
one morning, and you tried to brush your teeth…and you couldn’t?
What if you woke up
one morning, and you were served breakfast, and you didn’t like the food you
were served?
Suddenly, you would be
a mess. You’d ask for help from your parents, and would likely be embarrassed
that you had to ask them for help.
Autistic individuals are
often in this situation. Autistic people are expected to know how to do things
daily, but they can’t. Routines are imposed on them requiring them to do things
they cannot do. When they ask for help, they are sometimes denied help because
people say they aren’t trying hard enough, or that they’re old enough to know
better.
Now, I’m going to ask
you another question. What is something you can do well?
I’d like to ask you
another question. What is something you can’t do well?
Now there isn’t really
anything wrong with that, is there?
Autistic people are
the same way. There are some things that they can do well and other things that
they cannot do very well at all. However, it becomes a problem because many of
the things that we can’t do we are expected to do, day after day.
However, those without
autism aren’t expected to do what they can’t do.
Let’s get back to that
thing that you can do well. Before people knew you could do it, are people
expecting you to do it every day?
Now that you can do it
well, are people expecting you to do it every day?
This is a very
important point. You see, if you had never had that talent, no one would have
started to expect you to do it well. That expectation was not imposed by anyone
except yourself. On the other hand, everyone eventually expects us to be able
to get dressed by ourselves, even if we can’t do it.
Now, what about the thing that you can’t do very well. Are
people expecting you to do that every day?
If you’re not expected
to do something daily, or weekly, etc. then it doesn’t matter whether or not
you can do it or not. If you have been expected to do something and you can’t
do it, you know very well what happens—people get angry.
Now, how many of you
can tie your shoes?
Almost all of you can.
In fact, all of you are expected to know how to tie your shoes by now.
However, many autistic
individuals cannot tie their shoes. And sometimes, those autistic individuals
are savants, who can tell you what day of the week a calendar date fell on but
still cannot tie their shoes.
While I am able to tie
my shoes, I must always double-tie if I wear shoes with laces. This is how I
have adapted to this requirement. Other times I wear Velcro shoes—another adaptation.
This is because my shoelaces constantly untie if I simply single-tie them. When
I was in the fifth grade, however, shoe tying was extremely difficult, and it
often took me fifteen minutes to tie my shoes. When I got into the school
building, the first thing I had to do was change into my gym shoes. However, it
took me so long to do that that one day I was late for class and got in trouble
with my teacher. Then, on the way to the gym, my shoelaces would untie every
five minutes.
At the same time, I am able to give a presentation to an
audience.
Now I’d like to ask another question. How many of you have
friends?
All right, how many of
you don’t have friends?
Of those friends that
you have, how did you make them?
Did you want to make
them?
Now, did you have any
friends that you were forced to make?
If you were forced,
why?
Did you ever end up
liking the people you were forced to make friends with?
When you are with your
friends, what do you do with them?
When you are with your
friends, do you have any trouble knowing what to say?
You don’t. And that
would make sense. When you are having a conversation with one of your friends,
you instinctively know how to respond. Otherwise you would not be able to
continue that conversation. It just comes out of you. Even when you are angry
with your friend, you still know what to say to him or her.
Now, how would you
react if a kid came up to you who acted strangely? What would you do?
Next question. How
many of you have seen the movie “Agent Cody Banks?”
For those of you who
know the story, you will know that it is about Cody Banks, and the mission he
is given by the CIA. His mission is to befriend a girl named Natalie Connors to
find information about her father, who is unaware that he is working for a
terrorist organization.
Before he actually
introduces himself to Natalie, the CIA briefs him on what she likes. According
to the CIA, she likes Arabian horses, turquoise jewelry, pistachio ice cream,
and T.S. Eliot. His first assignment is to get invited to Natalie’s birthday
party.
Now, do you remember
the scene in that movie when Cody talks to Natalie for the first time?
During this scene, he
says things that everyone knows are quite stupid.
From the beginning, he
doesn’t know what to say. He walks up to Natalie, and very visibly shows his
uncertainty. He says to Natalie, “Are those books?”
“Uh, yeah,” Natalie
replies, not knowing why he would say something like that.
“I love books. I could
read all day. I just love them,” Cody says.
Natalie doesn’t
understand why he still is talking to her but she replies, “Great, then you’re
in the right place.”
Cody sees that he’s
not doing well so he decides to mention one of the interests the CIA told him
she had. “I especially love T.S. Eliot,” he replies.
“You do?” asks Natalie
in disbelief. To her, how could such a moron like T.S. Eliot?
“I think she’s
amazing. You know, the way she captures the female perspective, you know, it’s
great, it’s so female-like,” Cody replies.
Natalie now is just as
much in equal uncertainty as Cody is. Why is someone so stupid still talking to
her? “T.S. Eliot is a man,” Natalie points out, because she knows for certain
that’s right.
Cody tries to lighten
the situation up by saying, “Well, if you want to get all technical, of course,
but you know, you never know these days.”
This is it for
Natalie. This guy is just way too weird. So she asks him, “Do you happen to be
in Special Ed?”
Cody realizes that
this attempt failed so he tries to bring up something else the CIA told him she
liked. Horses. “I like horses. I think their hair thing is pretty cool,” Cody
says.
Natalie has had it.
“What a freak,” she exclaims, and walks away.
What Natalie doesn’t
know is that the CIA has put Cody in every one of her classes, in order to
increase the time that they can meet. At the beginning of her next class,
Natalie talks to her friends. When he walks up to her, trying to talk to her a
second time, Natalie’s friend says, “Uh oh. Here comes Horse Guy. Good luck,”
and walks away.
Wouldn’t you think he
was in Special Ed the way Natalie did?
How would you react if
Cody came up and talked to you like that?
That’s what autism is
like. We don’t know what to say in front of people our age all the time. We
feel just as uncertain as Cody did. And that uncertainty is very visible to
other people, and makes us seem strange. And other people think of us as
strange.
Just as Cody had no
idea what Natalie was going to say, having never been able to successfully talk
to a girl before, autistic people don’t know whether what they say next will
tease them or be acceptable. And let’s face it—many autistic people are
in Special Ed.
At the same time, autistic
people sometimes do well with other autistic people. Autistic people may find
their best friends in the autism community.
Also, unlike
neurotypical people, not all autistic people want friends in the first place,
or think friendship is desirable. You have had so many enjoyable friendships
that to you, friends are desirable. But autistic people don’t always want to be
with other people, and this isn’t always respected. Many school social workers
have tried to force autistic kids to have friends, and go to an even farther
extreme of making them have friendships with specific kids.
Now, do you think that
a child has a right to not have friends if they do not them?
I think they should be
given that right unless they need to have them. Many autistic adults, for
example, find themselves relying on friends as a support system. But autistic
children are not adults yet, and you shouldn’t try to force them to have
friends because they might need them when they become adults.
All right, I’m going
to make a face. You tell me how I feel.
Now, all of you
detected I was angry. But if you were autistic, you might not have detected
that.
Now, I’M GOING TO TALK
ABOUT AUTISM!!!
What did you think I
was feeling then?
You might have thought
that I was just angry, or I just had a naturally loud voice.
Autistic people learn
language and understand language differently than neurotypical people. Many
autistic individuals do not understand how the tone of their voice changes how
people understand what they said. Many autistic people talk too loud, in part
because they cannot hear they are too loud, like I just did, and don’t know
they’re talking too loud. Some autistic people talk with an angry tone but they
might not even be angry. Yet people think of them as actually angry and don’t
want to be with them.
What if that angry
tone was just the way you said things, and you didn’t know that’s what people
thought of you? You wouldn’t understand why everyone was trying to leave you.
You’d feel lonely and upset.
Some autistic people
also have a hard time understanding nonverbal language. They rely on what
people tell them in order to know if they are, for example, bothering someone.
If the neurotypical person tries to show anger on their face to try to get the
child to stop, and the person can’t understand his expression, he’s still going
to bother the neurotypical person.
Just as autistic
people can’t understand the impact of their tone of voice, they may not
understand what other people are trying to communicate by way of their tone of
voice. Many neurotypical people, when they are with other people, use nonverbal
communication in order to be polite to them but to still convey a message. It
is impolite to tell someone that you are boring them. Thus, to tell them that
you have to tell them nonverbally—by having a “bored” tone of voice or by
looking away. But many autistic people rely on people to say, “You’re boring
me,” in order to stop. When that never comes, they just keep talking. They
don’t understand that the person is using their tone of voice to communicate a
message.
Eventually, of course,
the neurotypical person gets so angry that they blow up in rage at the autistic
person, and the autistic person doesn’t understand what’s going wrong. The
neurotypical person has done more harm than good by being polite as a result.
This is why if you know someone is autistic, you should not be polite to them.
Autistic people also
have a hard time understanding idioms. Does anyone know what an idiom means?
An idiom is a saying
used to mean something else. If I told you the coast was clear, you’d
understand what that meant, right? “The coast is clear” is an idiom.
But many autistic
people take things literally. At one time I did, even though I don’t anymore.
But other autistic people would wonder why you were saying that if you weren’t
at the beach.
There was one time
when I sent an E-mail to a person, telling a joke. She replied, “James, you crack me up!” I was suddenly terrified.
After all, I had only sent her a joke, yet for some reason she was about to
die. I wrote to her, apologizing that I had caused her to almost die. I had
taken her idiom literally.
Okay, here’s another
question: How many of you are bothered by the lights of this room?
Many autistic people
have hypersensitive sight. They are bothered by bright lights like the ones in
this room. However, since no one else is bothered by them, they are forced to
deal with these lights they hurt their eyes as if they were looking at the sun.
Next question? How
many of you are bothered…
[The fire alarm goes
off. A teacher tells the students not to evacuate the building—it’s a part of
the presentation.]
by the ventilation
system in this room?
How many of you understand
what I’m saying right now?
[The fire alarm
stops.]
The following was not
a fire drill, nor did you hear an actual alarm. You heard a recorded sound on
my computer.
What you just heard
was the sound of a fire alarm—the sound you hear when you have a fire drill.
Many autistic individuals have sensitive hearing. They are the opposite of
deafness—they hear too well, so sounds like these are very painful to them.
Many autistic people are terrified of fire drills—and even have nightmares
about them at night. Some shiver in their shoes every morning if they are in a
school that doesn’t notify them if a fire drill is coming.
However, not all
autistic people are sensitive to all loud sounds. There are two types of loud
noises—sharp and sustained loud noises. A sharp loud noise is like a fire
alarm—it lasts a second and there is silence and then it happens again.
Sustained loud noise is like hard rock music—it is loud, but it is continuous.
Some autistic people are sensitive to one but not the other. Others are
sensitive to all loud noises.
Then other autistic
individuals are terrified if the loud noise is sudden—such as a surprise fire
drill, but if they know the sound is coming, then they are not terrified
anymore, because their body can prepare.
In my case, I knew the
fire alarm was coming, because I was in control of it.
Now, I’m going to
repeat what I said when the alarm was going off. How many of you understand
what I said when the alarm went off?
Some autistic
individuals cannot stand the sound of the ventilation system inside a
classroom. To them, listening to the teacher is like listening to the teacher
if the fire alarm was constantly going off. Just as it was more difficult for
you to pay attention to me when the alarm went off, it is more difficult for
the autistic person to pay attention to the teacher.
Other autistic people
hear so well they can hear what’s going on in neighboring classrooms, and even
cars on streets outside the window!
Now, I have another
question to ask. How many of you cannot stand the smell of your neighbor?
Some autistic
individuals smell too well. For this reason, they might be bothered by smells
that are acceptable to you. Other autistic individuals have another
problem—they have foul body odor themselves because they don’t understand the
importance of hygiene, and other people are bothered by their smell.
However, whatever
symptoms autistic individuals have, they are still people. Like all people,
they want to be treated with kindness and respect. You may not be able to
identify someone with autism at first sight, but you will be able to notice
these symptoms.
If you see someone
with one of these symptoms, they might not be stupid—they might just have
autism. Do not be afraid to ask them—many autistic people would be willing to
tell you. I would if you asked me.
Now, I will answer any
other questions you have about autism until it is time to leave. Thank you for
listening.